Brochures and videos about MYCAPSSA® (octreotide) capsules

Resources

Educational Tools to Learn More

Whether you’re considering the switch to MYCAPSSA or are already taking it, select the tab below to access helpful resources for you.

MYCAPSSA Brochure

Wondering if MYCAPSSA could be right for you? This brochure may help you and your doctor take the next step together.

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Patient Support Overview

Discover the comprehensive and personalized support you will get with the Chiasma Access & Patient Support (CAPS) program.

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Be Heard: A Guide to Discussing Treatment
Help your doctor better understand the burden of SSA injections. You’ll learn ways to advocate for your treatment preferences, discuss MYCAPSSA with your doctor through email or a patient portal message, and discover tips for making the most of your appointments, whether they’re virtual or in-person.

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Real Talk: Making Yourself Heard in Treatment Discussions

Allison, a person living with acromegaly, demonstrates strategies for helping your doctor understand the real-life impact of SSA injections, advocating for your treatment preferences, and discussing MYCAPSSA. She’s joined by her pituitary endocrinologist, Dr. Blevins, from the California Center for Pituitary Disorders at UCSF Medical Center

Listen and Learn

Full transcript

Narrator: This recording is brought to you by the makers of MYCAPSSA® (octreotide) delayed-release capsules, the only oral somatostatin analog (SSA) capsule for patients with acromegaly who responded to and tolerated treatment with octreotide or lanreotide. Please listen for the full Indication and Important Safety Information at the end of the recording.

Narrator: Real Talk: Making Yourself Heard in Treatment Conversations

Allison: Hello. My name is Allison, and I have acromegaly. Honestly, for me, one of the worst parts of living with this disease has been my SSA injections.

Dr. Blevins: And I’m Dr. Blevins, Allison’s pituitary endocrinologist. If my patient is struggling with injectable treatments for acromegaly, I want to know about it so I can help. And to those listening, your doctors likely feel the same way.

Allison: But sometimes it's hard to explain these struggles to your doctor. Maybe you’re not sure what to say. Maybe you feel like you’re not being heard. So I’m going to act out a conversation with a doctor. You can hear how I advocate for myself, even in the face of several challenges.

Dr. Blevins: An actor will play the doctor, so I can jump in to explain why Allison’s approach helps her solve each challenge.

We’ll start at the beginning of an appointment. It’s good to bring up your highest priority right away. Let’s hear how Allison focuses on what’s important to her.

Doctor: So how are things going?

Patient/Allison: I really want to talk about some issues I’m having with my SSA injections.

Doctor: Sure.

Patient/Allison: I hate needles, so I’ve always dreaded my injections. But on top of that, they’re painful and I get lumps at the injection site. They leave bruises. And they have a major impact on my schedule. It’s making me miserable.

Dr. Blevins: Notice how Allison responded when the doctor asked how things were going. She didn’t say “good” or “fine.” She was specific. It’s important to explain what you’re going through. Otherwise, your doctor may not recognize that anything is wrong.

Now Allison is about to face another challenge: Her test results don’t show the whole story. As the discussion continues, pay attention to how Allison expands on what she’s already shared.

Doctor: Hm, OK. Your test results actually look really good. Your IGF-1 seems under control.

Patient/Allison: Well, I read about an oral medicine for acromegaly called MYCAPSSA. It’s a pill that’s taken twice a day instead of going in for injections every month. Can we consider switching me to that?

Doctor: Hmm. With numbers like yours, I’m hesitant to make a change now. You’re just so well controlled.

Patient/Allison: But I don’t feel like I have control. I rely on someone else to give me my acromegaly medicine every month. And I just feel like my life revolves around my injections. For example, recently, my husband and I had to travel unexpectedly for a family funeral. We had to fly home early for my injection.

Dr. Blevins: Doctors want to help their patients live their best lives. But they need you to explain what the test results don’t show. Allison explained the real-life impact of her injections. Remember, you are the expert on how treatment impacts your life, so don’t be afraid to explain the details.

With the appointment coming to an end, Allison still hasn’t had a chance to discuss whether MYCAPSSA might be a good option for her. But she’s going to find a way to advocate for herself when time is running out.

Doctor: I’ll need to research MYCAPSSA more. But we can talk about it next time.

Patient/Allison: Actually, the company that makes MYCAPSSA has a support program that’s been helpful. It’s called Chiasma Access and Patient Support, or CAPS. They also offer information and support to doctors. Can I give them your contact info?

Doctor: That would be fine.

Patient/Allison: And can we schedule an appointment to discuss MYCAPSSA before my next check-up? A virtual visit would be ideal because I travel a lot for my check-ups and injections.

Doctor: Yeah. That works for me.

Dr. Blevins: Allison solves the short appointment problem by offering to schedule a follow-up to focus on her treatment plan. She also offers to connect her doctor with more information. Some doctors only have a few acromegaly patients because it’s such a rare condition. They might not be as familiar with the latest medical advances in acromegaly treatment. So, it’s OK to ask if you can share information that might be helpful.

For example, we know that MYCAPSSA is only for acromegaly patients who have tolerated octreotide and lanreotide. And in some patients, it may cause an allergic reaction or affect the gallbladder. These are other things to discuss with your doctor.

Allison: We hope you’ve learned some new strategies to help you in your next appointment, be it virtual or in person. And be sure to download the Be Heard Treatment Discussion Guide to take what you’ve learned here a step further. It also includes guidance for talking with your doctor via email or a patient portal.

Always remember that you are the expert on your experience. Thanks for listening.

INDICATION AND IMPORTANT SAFETY INFORMATION

What is MYCAPSSA (octreotide) for?

MYCAPSSA is an oral prescription medicine used in the long-term maintenance treatment of acromegaly in people for whom initial treatment with octreotide or lanreotide has been effective and tolerated.

If these treatments are effective and your body is tolerating it, you may be eligible to take MYCAPSSA instead of the injections. Ask your doctor if this oral treatment is appropriate for you.

What is the most important safety information I should know?

MYCAPSSA can cause problems with the gallbladder. Tell your healthcare provider if you have any of these symptoms: sudden pain in your upper right stomach (abdomen) or right shoulder or between your shoulder blades; yellowing of your skin or the whites of your eyes; fever with chills; or nausea.

MYCAPSSA may affect your blood sugar, thyroid hormone, or vitamin B12 levels. Tell your healthcare provider if you have any problems or conditions related to these. Your healthcare provider may monitor these levels during your treatment with MYCAPSSA.

Tell your healthcare provider if you have an irregular heartbeat.

Who should not use MYCAPSSA?

MYCAPSSA can cause a serious allergic reaction including anaphylactic shock. Stop taking MYCAPSSA right away and get emergency help if you have any of these symptoms: swelling of your tongue, throat, lips, eyes or face; trouble swallowing or breathing; severe itching of the skin with rash or raised bumps; feeling faint; chest pain; or rapid heartbeat.

Do not use MYCAPSSA if you are allergic to octreotide or any other ingredients in MYCAPSSA. If you need to know the ingredients, ask your healthcare provider or pharmacist.

If you have certain other medical conditions, you should use MYCAPSSA with caution. Tell your healthcare provider about all your medical conditions, especially the following: pregnancy or breastfeeding; liver disease; kidney disease; or difficulty in emptying bladder completely.

Tell your healthcare provider about all the medicines you take. MYCAPSSA may affect the way other medicines work, and other medicines may affect how MYCAPSSA works.

What are the possible side effects of MYCAPSSA?

The most common side effects are headache, joint pain, nausea, weakness, diarrhea, and sweating a lot.

Talk to your healthcare provider if you have any side effect that bothers you or that does not go away. You may report side effects to the FDA at 1-800-FDA-1088.

Keep MYCAPSSA and all medicines out of the reach of children.

How should I take MYCAPSSA?

Do not take MYCAPSSA with food. MYCAPSSA should be taken with a glass of water on an empty stomach. Take MYCAPSSA at least 1 hour before a meal or at least 2 hours after a meal (for example, you could take your morning dose 1 hour before breakfast and your evening dose at bedtime).

Intro to MYCAPSSA

If you’d like to know more about MYCAPSSA, download this helpful brochure.

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How to Take MYCAPSSA Brochure

Learn the dos and don’ts of dosing with MYCAPSSA by reading this brochure.

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Remembering to Take MYCAPSSA

Follow these tips and tricks to help build MYCAPSSA into your daily routine and stay on track with your doses.

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Symptom Tracker

Use this resource to take note of any changes in your acromegaly signs and symptoms after starting MYCAPSSA.

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FAQ

Don’t let any of your questions go unanswered. Refer to these common questions and answers.

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CAPS Patient Services

Learn all the ways the CAPS team is here to help you along your treatment journey.

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What I recommend and advise to other patients is do as much research as possible and get informed. Knowledge is power and you need to be self-advocating. You need to take care of yourself first and foremost.

– Susan, Living With Acromegaly

Videos

Click here to watch the MYCAPSSA dosing video and hear from MYCAPSSA patients and people living with acromegaly.

Bonnie’s MYCAPSSA Story

Bonnie’s MYCAPSSA Story

Bonnie and her family share their experience with acromegaly and what Bonnie’s switch to MYCAPSSA meant for them.

How to take mycapssa

Ready to start your treatment journey with MYCAPSSA? Watch this dosing video to learn how to take your capsules properly and much more.

Allison’s MYCAPSSA Story

Hear from Allison about her transition and experience taking MYCAPSSA and her advice for others living with acromegaly.

Facebook Live: Self-advocacy in the rare disease community

Hear from Jill Sisco, President of Acromegaly Community, and several of her colleagues, as they discuss the importance of being your own best advocate.

5 tips to achieve effective communication with healthcare teams: A discussion led by Jill Sisco

Watch Jill Sisco and two of her special colleagues share their acromegaly stories and helpful strategies for communicating with your healthcare team.

Acromegaly treatment is changing shape: A discussion led by Jill Sisco

Watch Jill Sisco, President of Acromegaly Community, lead a discussion with patients living with acromegaly and participants in a MYCAPSSA clinical trial.

When you start on MYCAPSSA, I’d recommend sitting down with your family and talking to them about starting a new medication, what that means, and what your plan is for when you want to take it. Talk about how that fits in with your schedule. For me, we discussed how it would fit in with our daughter’s activities, our work schedules, and our meal times–things like that. And then they can be a part of your routine and help remind you to take your medicine or check that you didn’t forget a dose. Make them a part of it.

– Shannon, Living With Acromegaly
Shannon participated in a clinical trial for MYCAPSSA

Want us to contact your healthcare team and share information on MYCAPSSA?

Share your doctor’s contact information, and the CAPS team will reach out to talk to them about MYCAPSSA. We can help ensure that your healthcare provider has the information that he or she needs, so that during your next appointment, you can have an informed discussion about MYCAPSSA. Please enter the following information in the form below:

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FAQ

Have questions about MYCAPSSA? Here are some common questions and answers.

What is MYCAPSSA® (octreotide) delayed-release oral capsules?

MYCAPSSA is an oral prescription medicine approved for use in the long-term maintenance treatment of acromegaly in people for whom initial treatment with octreotide or lanreotide has been effective and tolerated.

If these treatments are effective and your body is tolerating it, you may be eligible to take MYCAPSSA instead of the injections.

Is MYCAPSSA a replacement for my current injectable somatostatin analog (SSA) injection?

If your current SSA treatment is effective and your body is tolerating it, you may be eligible to take oral MYCAPSSA capsules instead of your monthly injections.

What are the most common side effects of MYCAPSSA?

The most common side effects of MYCAPSSA are headache, joint pain, nausea, weakness, diarrhea, and sweating a lot.

How do MYCAPSSA capsules work?

The main ingredient of MYCAPSSA is octreotide, a well-known and proven medication. MYCAPSSA capsules, engineered with Transient Permeability Enhancer technology (TPE)®, have a special coating on each capsule that protects the octreotide medication inside. Once swallowed with water, this coating on the capsule protects the medicine from being released too early or broken down before it gets to where it needs to be. The coating keeps the octreotide intact until it can make it to the right place in your body, your small intestine, to let the medication start to do its job.

Can MYCAPSSA help maintain my IGF-I and GH levels?

Yes, MYCAPSSA was proven to effectively maintain normal IGF-I and GH levels in the majority of patients.

What can I expect when transitioning to treatment with MYCAPSSA?

Once you’ve started on MYCAPSSA, your doctor may or may not decide to adjust the number of capsules you take each day, depending on your IGF-I hormonal levels and your acromegaly signs and symptoms. Make sure to have an open dialogue about how you feel and let your doctor know how MYCAPSSA is working for you. This will help ensure that you are receiving the right amount of medicine to properly manage your acromegaly.

How do I take MYCAPSSA?

It’s important to schedule your MYCAPSSA doses around meals. Each dose of MYCAPSSA should always be taken on an empty stomach and only with a glass of water. Do not eat or drink anything except water for 2 hours before taking MYCAPSSA and for 1 hour after. That means there should not be any food in your stomach for a total of 3 hours with each MYCAPSSA dose.

Why is it so important to take my doses of MYCAPSSA on a regular schedule?

Missing your dose may keep your body from getting enough octreotide each day. It’s important to stay on track each day, giving your body the right amount of medicine every day to control your acromegaly.

Can I have food, coffee, or another drink in my stomach when I take MYCAPSSA?

Do not eat or drink anything, except water, for 2 hours before taking MYCAPSSA and for 1 hour after. If you eat within 2 hours before or 1 hour after taking MYCAPSSA, the drug may not have the effect you want. The drug may not be absorbed properly into your body. Time your taking of MYCAPSSA around your meal schedule.

What happens if I forget to take a dose?

If you forget to take your dose of MYCAPSSA, do not take the missed dose at a later time. Just take the next dose at the scheduled time. Call your doctor right away if you are having trouble regularly taking your doses. Not taking MYCAPSSA consistently may affect how you feel and how well the medicine can work for you.

How will MYCAPSSA be delivered to me?

MYCAPSSA will be delivered monthly to your home. Your CAPS Patient Care Specialist will help coordinate with your specialty pharmacy to deliver MYCAPSSA when and where it’s most convenient, and you should receive a call from the pharmacy to confirm the shipment.

Will MYCAPSSA be covered by insurance?

It is anticipated that MYCAPSSA will be covered by the majority of insurance companies. Our dedicated CAPS Team will help you understand how MYCAPSSA is covered by your insurance plan.

What will my out-of-pocket cost be for MYCAPSSA?

All eligible commercially insured patients can get MYCAPSSA for $0 out-of-pocket. Call or email the CAPS Patient Care Specialists at 1-833-3GO-CAPS (1-833-346-2277) or email us at [email protected] to learn more about financial support services.

Is there a patient support program for MYCAPSSA?

Dedicated Patient Care Specialists from the Chiasma Access & Patient Support (CAPS) program will help you and your doctor throughout your treatment journey. You can call the CAPS Patient Care team today at 1-833-3GO-CAPS (1-833-346-2277) or email us at [email protected] to learn how we can help you get started on MYCAPSSA.

Will I get refill reminders to ensure that I receive my MYCAPSSA each month?

Yes! Your specialty pharmacy will help you stay on track with your refills of MYCAPSSA. Your pharmacy will reach out each month to coordinate a convenient delivery time for your refill. If any questions or issues arise, you can always contact your CAPS Patient Care Specialist for further assistance.

How should I store MYCAPSSA?

Before first use, store unopened wallets of MYCAPSSA in a refrigerator. Be sure not to freeze your MYCAPSSA. After the first use for each wallet, you can store opened wallets at room temperature between 68°F to 77°F (20°C to 25°C) for up to 1 month. Be sure to keep your MYCAPSSA in a safe place and always out of the reach of children.

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INDICATION AND IMPORTANT SAFETY INFORMATION

What is the most important safety information I should know?

MYCAPSSA can cause problems with the gallbladder. Tell your healthcare provider if you have any of these symptoms: sudden pain in your upper right stomach (abdomen) or right shoulder or between your shoulder blades; yellowing of your skin or the whites of your eyes; fever with chills; or nausea. Tell your healthcare provider if you have an irregular heartbeat. MYCAPSSA may affect your blood sugar, thyroid hormone, or vitamin B12 levels. Tell your healthcare provider if you have any problems or conditions related to these. Your healthcare provider may monitor these levels during your treatment with MYCAPSSA.

Who should not use MYCAPSSA?

MYCAPSSA can cause a serious allergic reaction including anaphylactic shock. Stop taking MYCAPSSA right away and get emergency help if you have any of these symptoms: swelling of your tongue, throat, lips, eyes or face; trouble swallowing or breathing; severe itching of the skin with rash or raised bumps; feeling faint; chest pain; or rapid heartbeat.

Do not use MYCAPSSA if you are allergic to octreotide or any other ingredients in MYCAPSSA. If you need to know the ingredients, ask your healthcare provider or pharmacist.

If you have certain other medical conditions, you should use MYCAPSSA with caution. Tell your healthcare provider about all your medical conditions, especially the following: pregnancy or breastfeeding; liver disease; kidney disease; or difficulty in emptying bladder completely.

Tell your healthcare provider about all the medicines you take. MYCAPSSA may affect the way other medicines work, and other medicines may affect how MYCAPSSA works.

What are the possible side effects of MYCAPSSA?

The most common side effects are headache, joint pain, nausea, weakness, diarrhea, and sweating a lot.

Talk to your healthcare provider if you have any side effect that bothers you or that does not go away. You may report side effects to the FDA at 1-800-FDA-1088.

Keep MYCAPSSA and all medicines out of the reach of children.

How should I take MYCAPSSA?

Do not take MYCAPSSA with food. MYCAPSSA should be taken with a glass of water on an empty stomach. Take MYCAPSSA at least 1 hour before a meal or at least 2 hours after a meal (for example, you could take your morning dose 1 hour before breakfast and your evening dose at bedtime).

What is MYCAPSSA (octreotide) for?

MYCAPSSA is an oral prescription medicine used in the long-term maintenance treatment of acromegaly in people for whom initial treatment with octreotide or lanreotide has been effective and tolerated.

If these treatments are effective and your body is tolerating it, you may be eligible to take MYCAPSSA instead of the injections. Ask your doctor if this oral treatment is appropriate for you.

READ MORE  

INDICATION AND IMPORTANT SAFETY INFORMATION

What is the most important safety information I should know?

MYCAPSSA can cause problems with the gallbladder. Tell your healthcare provider if you have any of these symptoms: sudden pain in your upper right stomach (abdomen) or right shoulder or between your shoulder blades; yellowing of your skin or the whites of your eyes; fever with chills; or nausea. Tell your healthcare provider if you have an irregular heartbeat. MYCAPSSA may affect your blood sugar, thyroid hormone, or vitamin B12 levels. Tell your healthcare provider if you have any problems or conditions related to these. Your healthcare provider may monitor these levels during your treatment with MYCAPSSA.

Who should not use MYCAPSSA?

MYCAPSSA can cause a serious allergic reaction including anaphylactic shock. Stop taking MYCAPSSA right away and get emergency help if you have any of these symptoms: swelling of your tongue, throat, lips, eyes or face; trouble swallowing or breathing; severe itching of the skin with rash or raised bumps; feeling faint; chest pain; or rapid heartbeat.

Do not use MYCAPSSA if you are allergic to octreotide or any other ingredients in MYCAPSSA. If you need to know the ingredients, ask your healthcare provider or pharmacist.

If you have certain other medical conditions, you should use MYCAPSSA with caution. Tell your healthcare provider about all your medical conditions, especially the following: pregnancy or breastfeeding; liver disease; kidney disease; or difficulty in emptying bladder completely.

Tell your healthcare provider about all the medicines you take. MYCAPSSA may affect the way other medicines work, and other medicines may affect how MYCAPSSA works.

What are the possible side effects of MYCAPSSA?

The most common side effects are headache, joint pain, nausea, weakness, diarrhea, and sweating a lot.

Talk to your healthcare provider if you have any side effect that bothers you or that does not go away. You may report side effects to the FDA at 1-800-FDA-1088.

Keep MYCAPSSA and all medicines out of the reach of children.

How should I take MYCAPSSA?

Do not take MYCAPSSA with food. MYCAPSSA should be taken with a glass of water on an empty stomach. Take MYCAPSSA at least 1 hour before a meal or at least 2 hours after a meal (for example, you could take your morning dose 1 hour before breakfast and your evening dose at bedtime).

What is MYCAPSSA (octreotide) for?

MYCAPSSA is an oral prescription medicine used in the long-term maintenance treatment of acromegaly in people for whom initial treatment with octreotide or lanreotide has been effective and tolerated.

If these treatments are effective and your body is tolerating it, you may be eligible to take MYCAPSSA instead of the injections. Ask your doctor if this oral treatment is appropriate for you.